Raising Awareness of Disabled Lives and Health Care Rationing During the COVID-19 Pandemic
Lund, E. M., & Ayers, K.B. (2020,May28). Raising Awareness of Disabled Lives and Health Care Rationing During the COVID 19 Pandemic. Psychological Trauma: Theory, Research, Practice, and Policy. Advance online publication. http://dx.doi.org/10.1037/tra0000673
In view of the most current events and the blatant as well as underlying and systemic racism that people of color experience in our country, the UCCEDD stands in support of all of our stakeholders, family members, self-advocates, children, youth and adults with disabilities, colleagues and friends to address racism, injustice and inequities. Our vision statement clearly states that we envision a future in which “all people, including children and adults living with disabilities, … , fully participate in society and live healthy, safe, self-determined and productive lives.” While our focus is on people with developmental disabilities, we acknowledge that our vision for a just future cannot be achieved in a racist world.
Our UCCEDD is committed to working as a team to recognize and dismantle systems that support racism while actively supporting each other and the people we serve to acknowledge, honor, and appreciate differences. We are with you.
The UCCEDD is excited to announce the release of ten video modules on Rubinstein-Taybi Syndrome (RTS). Nine of the modules focus on medical subspecialty care for patients with RTS and one is dedicated to families’ experiences of living a good life with RTS in their homes, schools and communities. We hope these videos will contribute to increased understanding and optimal treatment of individuals with RTS. We appreciate the time, knowledge and expertise that these medical professionals and families put into making these videos with us.
Individual videos and links are listed below.